Sunday, October 23, 2016
One of the decorations I got was some skeletons in yoga poses. They're ceramic, but my kids haven't broken decorations for at least a year, so I thought I was good.
Well I found them broken and then ask my kids about it and they both started freaking out and saying they were so sorry. Once Gratton was calm enough to tell me what happened, I got the story.
He said they were battling with the skeletons and only one survived. I said, "and you just thought you could break my skeletons?" "No mom, I thought they were WAY STRONGER THAN THAT!"
Saturday, October 8, 2016
"My son is correcting ME on pokemon?! Best day ever!!" In the voice of Rupunzel, from Tangled.
Monday, September 12, 2016
- Magic eraser- it comes in a 2 pack. Having gone through many clean checks as an undergrad, and when renting houses, I'm a huge fan of magic erasers. These at the dollar tree worked just as well! I'm never buying them anywhere else again.
- Painters tape. I've always hated how expensive painters tape is, when you need to use so much of it! Dollar store painters tape works just as well!
- Drano- yup! Dollar store Drano works! I was amazed.
- Plumber's snake- my husband said it worked really well.
- Paint brush- it worked great. And since it was only $1, I threw it away instead of washing it out. After painting, i HATE cleaning out brushes.
Sunday, May 22, 2016
Monday, May 16, 2016
Sunday, May 15, 2016
The second plane, taking us from Seattle to Minnesota, is much nicer than the first one. I really was worried that last one would fall apart mid flight. Before takeoff, the pilot said that we had to fly at a lower altitude due to maintenance issues, so the flight would take longer than expected. Due to the altitude and slower speed of the plane, we barely made our connection!
This plane though is much nicer, and makes up for the first one! There is even an outlet to charge your electronic devices! This is the first plane I've been on with that particular amenity.
Unfortunately, due to the connection being so rushed, we didn't get to eat dinner. I'm starving, and might even cave to these ridiculous airplane meal prices. I can't eat after midnight, due to my surgery in the morning, and we're supposed to land right before midnight, Minnesota time. Hopefully I'll catch some food either on the plane or at the airport!
The first flight was pretty awful. I was in lots of pain, the seats were uncomfortable, and someone sitting near us smelled bad. So far this flight is much better. Talk to you in Minnesota!
Friday, May 13, 2016
It's usually a very routine procedure to remove gallstones from your bile duct. I should've been able to get it with my first pancreatitis attack, in 2011 but for some reason the Dr treating me in the Hospital decided not to do it. The surgeon just took out my gallbladder, and they said I'd get better.
So they removed my gallbladder, but the pain continued. The GI Dr wouldn't believe me though because the pancreas numbers went back to normal after a few months.
All my other drs (primary care and my hematologist I see for my blood disorder) said this is the first time they've ever had GI Dr's refuse to do it. We've been trying to get it done for 5 yrs, because they have thought there must still be a stone there or sludge or something causing the pancreas pain. We even went to the university of Utah.
My PCP and my hematologist both had different Dr's agree to do the ERCP during consults over the phone, but then when I showed up they would refuse to do it.
Well, January of this year, after 5 yrs, my pancreas numbers finally got high again, and my PCP had proof that my pancreas needed to be reconsidered. This was in January. I went back to the local GI Dr, after this pancreatitis hospitalization, and after seeming like he finally believed me, he ran labs. But when he got the results, once again said the labs were normal and there was nothing he could do. This brought me to my breaking point.
I do my best to look on the bright side and not complain, but after 5 years of pain, finally having the lab proof that the Dr's said we needed, and then being thrown aside again, I'd had enough. One night (in March i think), the pain was so horrible that I got desperate. I started scouring the Internet for Dr's who cared about patients suffering from pancreatitis. I found the university of minnesota, where they pioneered the TP-AIT surgery for patients with chronic pancreatitis. I don't have chronic pancreatitis, but I decided that if they cared enough about their patients to take out their pancreas' and allow them to choose diabetes over chronic pancreatitis, these Dr's must get it.
I contacted the university of minnesota, and saw Dr Amateau on April 6th. After doing an MRCP with secretin, he said they found proof of a small stone in my cystic duct. They scheduled the ERCP to remove it, and it's being done Monday May 16th. He said it might not resolve all the pain, but after 5yrs I don't expect it to. Any answers would be nice though, because pancreas pain without an explanation is pure torture. I wouldn't wish it on my worst enemy, even if I had one.
Sunday, May 8, 2016
Sunday, April 17, 2016
We're driving home from visiting my cousin and his family. The kids and I stayed there for a whole week. It was a blast. Now we're on our way home.
Gratton asked David how cars work, and how you make them go faster. David explained pistons and stuff, and asked if he understood. Gratton said yeah, I understand. Then he had his thinking face on for a while, and said- "Dad. Tell me more about engines." It's really cool how Gratton is so curious and wants to learn about everything.
Thursday, April 14, 2016
When we had the appointment with him, we got the impression that he wasn't planning on finding anything on the MRCP, so I was a bit shocked that there's a stone. Especially since I had my gallbladder removed 5 years ago. I don't know if it's been there the whole time, or what.
We're scheduled to go back to Minnesota on May 16th for an endoscopic ultrasound to confirm the stone, and then an in tandem ERCP to remove it. I'm a little nervous, but also excited and hoping this can help the constant pain.
Tuesday, April 5, 2016
I just saw Dr. Amateau, and it went well. He upped my Creon (pancreatic enzymes) dose by 50% and then put me on another new med too. He ordered an MRCP with secretin (to see my pancreas and ducts), and labs. I just got finished with the labs, and now we're waiting at the pharmacy for the new medicine.
The nurses are setting up the MRCP, and the Dr said we should be able to get it done today. I'm hoping we can, since our flight leaves tomorrow morning. After he gets the tests done, he said he'll have a better idea of what to do next.
So for now- Increase pancreatic enzymes, take new medicine for pancreas, and labs and imaging. Also I have to have my primary care Dr follow up with my blood sugar problems, and to have a stricter low fat diet. The paper I was given by the hospital when I got pancreatitis said that I didn't have to be on a low fat diet, if I was on pancreatic enzymes. I guess I need the enzymes and a low fat diet.
If I have another flare up with elevated enzymes, or if he sees some stuff on the MRI (dilated ducts, and some other medical terms I forgot) he said he'll want an ERCP. He said he's glad I haven't already had lots of invasive procedures, and that Dr's have been "gentle" with me, even if some have "dropped the ball" in other areas. He said that sometimes people come in and he can't tell what problems were caused by the Dr's procedure, and what problems were there originally.
I'm glad that I at now have a Dr who understands how to prescribe the pancreatic enzymes and sees patients like me every day.
Monday, April 4, 2016
The hotel is awesome and the city is really nice. I'm glad we chose this hotel because it's near everything, and then they also have a shuttle that will take you anywhere. So that saves tons of money, not needing taxi's.
However, at the last minute my insurance decided they wouldn't pay for it without talking to the doctor for a peer-to-peer consult. But the Doctor can't talk to them until after he's seen me.
So today I'm just laying in bed sleeping. I wanted to be able to explore the city with David, but I'm way too weak. The flights yesterday really made me sick. I don't understand why. Maybe because of my blood disorder? I dunno.
So David is out getting food for us, and I'm going to go to sleep. I'm so grateful that my sister-in-law Kirstie is watching our kids, so that we could be here and try to get some answers, and hopefully a plan to help me get better. And also thanks to my cousin Ryan and Suzy for taking us to the airport yesterday. I'll update again, after we see the doctor tomorrow.
Friday, March 25, 2016
Lately, it's felt like I'm getting exponentially sicker. I walk to the end of the hall and back and feel out of breath and tired. I don't sleep all day, but I need to rest so much. It seems like for every 5 minutes I'm up doing something, I need at least a 15-20 min rest. It's very frustrating.
My pancreas pain has gotten steadily worse. It now hurts constantly, and gets worse when I eat or drink. The pain itself is exhausting. In January my pancreas numbers were elevated again, so I was in the hospital for 6 days. David and I are going to Minnesota April 4th and 5th to see a pancreas specialist. I really hope they can help me. The constant pain is getting really hard and depressing. It's been 5 years of pancreas pain, and sometimes it just feels like it's never going to end.
Wednesday, March 23, 2016
Tuesday, March 15, 2016
Sunday, March 13, 2016
Gratton loves playing video games, and says he's going to be a video game Maker when he grows up. He likes the games where he can create things- Little Big Planet, and Minecraft. He can do some impressive stuff. Too tired to explain it now, but I'll write more later.
This week we also taught him how to do multiplication. He quizzes us all day long, and we quiz him back. I think school will be a breeze for him
Kahlan loves playing with her toys, and is so cute when she does it. She makes voices for her different toys, and comes up with the funniest stuff. She also tries being just like mommy!
So David and I were playing magic, when we heard kahlan saying to her doll, "Go to sleep baby, and don't wake me up!" Then a second later, in an exasperated voice, "Baby, mommy needs to sleep, go back to bed!"
It was so cute and funny. And it's good to know that she does hear us and remember what we tell her, even though she doesn't always listen
Having kids is hard work, but pretty awesome.
Thursday, February 18, 2016
Kahlan gave her dolls a bath in orange juice last night when i was gone. David said she asked for his empty cup but he didn't know why she wanted it, so he just gave it to her. She poured herself a glass of oj, and her dolls had a spa party....
When I got home, there was OJ everywhere..... We all survived, but only barely.
Wednesday, February 17, 2016
I'm at the Rexburg tabernacle, watching Nancy Mauery Tietjen's symphony rehearsal. It's pretty amazing, I'm glad I came. This, along with my coloring book is making me feel much better. The pancreas pain is still there, but it's helping in other ways; music therapy is real. I'm glad David encouraged me to venture out of the house!
Wednesday, January 20, 2016
"Tonight Kahlan said "I want to go bug my dad" haha. Not go see my dad but go bug my dad."
She is so hilarious! And crazy!