Mr and Mrs Awesome

Health update part 2 So now with the history, labs and 2 weeks of the continuous blood sugar monitor results, my specialist in Utah who is a nurse practitioner who also has her PhD in nutrition, and was a diabetes educator before opening her clinic (basically crazy credentials), she is pretty positive I've got an insulinoma.  So she and my dmba nurse case manager have been doing everything they could, speaking to each other, making tons of calls, to get me in as soon as possible with the right specialist.  Thursday morning- about the time I'm falling down the stairs, the above mentioned nurse case manager Jill, emailed me and told me that I can't go on vacation because my health problems are too dangerous to go anywhere without a pancreas workup for that insulinoma. I didn't fully read and understand the email till Friday at like 430. I tried calling the specialist recommended but they weren't open Fri.  So I emailed my nurse case manager and told her I'll rest ...

I somehow got a shadow ban on Facebook, so it looks like they're not showing my pay updates. Maybe this will work better.  Update part 1- I couldn't explain the last week to you in a text fb update or a blog if I tried. But it does feel like I should share cause it helps me, but then I feel like I'm being a social media whiner. David Mayfield suggested I make YouTube video updates. My health this week has literally changed hour to hour this. I've wanted to do YouTube updates but then have been scared people would think I want attention. But I'm learning so much through all this, that maybe I can help others who are stuck in the same place I've been for the last 12 years now.  But the finality of everything that happened this week ended up with me falling down the stairs while having low blood sugar, even while holding the rails. We were supposed to leave for our summer family vacation in like 5 hours after the fall. So we rescheduled our trip for the second time...

I am going to post what was going on as I wrote in my journal or FB posts, because I ven't kept the blog up well, while being sick this last decade Gratton 10 yrs ago today, I took you to the Zoo and you got so worn out you slept in the car!! It is a big deal because you hated being in the car! I love How You’re holding the juice box while asleep. I do remember how you liked to take out the straws and have me put them back in!

I was doing a FB post but then decided it was too long and whiney. So I am posting it here instead. Okay I forgot about one great thing that happened. Someone we know from church was doing research for me on who the best Pancreas Drs are. While doing this, his friend who is a Dr and treats pancreas patients agreed to at see me for a consultation (but made sure his friend and we knew that he couldn't promise anything). David found this out yesterday but this phone call came in while I was in pain and so of course I forgot. He reminded me tonight though, and I just remembered In the beginning of my illness, I sought out the best pancreas Drs, and went all over the country trying to get better. Later, once those pancreas Drs had me convinced that I was crazy and my pancreas was not an issue anymore, I stopped seeking answers about my pancreas and just worked on getting the complications caused by the pancreatitis fixed (SMA syndrome, MALS and Nutcracker syndrome). My psychiatrist ...

I gotta get back to cleaning/organizing, while I still feel well enough! I had this idea pop into my head though that I didn't want to forget to share! I had it while organizing craft stuff between cleaning my bathroom. Hair tie holders though- I've tried lots of ways for organizing them. Small elastic ones are the most frustrating to me. They get everywhere! I had found an extra carabiner and put it away earlier. Then I found 2 small elastic bands I needed to put away in the kids bathroom. I had the idea to put them onto my spare carabiner! It worked great! you can easliy get them off, and easily put them on, and it doesn't take up the prime bathroom drawer real estate!

This week, my nephew went out of town and so his girlfriend was really bored! She asked if she could take family photos of us, and I said yes. We always put it off because either David or I want to get more fit, or we just are busy, ect. The kids are growing so fast though, so we need to stop doing that! We don't look too bad in the pictures anyway, so there was no reason to wait. Better to do pictures now, get in better shape and then get MORE family pictures done. Grace is only in high school but she is good! Thank you Grace! She scouted out a location, and found a super good spot! There was a snow storm after she scouted it,and that made it a little slow going to get there but it was so worth it! It was also really cold! So we didn't do like individuals and stuff. So Grace suggested we do it in the Fall next year, and I agree. Though the snow background is so gorgeous maybe we'll do fall AND winter! After we got back to the car, Gratton was looking over the edge into the...