3-25-16

Lately, it's felt like I'm getting exponentially sicker. I walk to the end of the hall and back and feel out of  breath and tired. I don't sleep all day, but I need to rest so much. It seems like for every 5 minutes I'm up doing something, I  need at least a 15-20 min rest. It's very frustrating.

My pancreas pain has gotten steadily worse. It now hurts constantly, and gets worse when I eat or drink. The pain itself is exhausting. In January my pancreas numbers were elevated again, so I was in the hospital for 6 days. David and I are going to Minnesota April 4th and 5th to see a pancreas specialist. I really hope they can help me. The constant pain is getting really hard and depressing. It's been 5 years of pancreas pain, and sometimes it just feels like it's never going to end.

Comments

Post a Comment

Popular posts from this blog

Health update, a big one

There is fluid buildup in my abdomen putting pressure on my lung. All the weight I've been gaining since the first of the year was fluid buildup. The pulmonologist is doing more tests still, but they put me on lasix for the fluid buildup, and I've got a cardiology appt on the books.  Before all this, we planned a cruise with the in-laws for potato harvest break, and my PCP Dr Jones told us to go and have fun. I will have my oxygen, and we ordered a power scooter like the electric ones at grocery stores to use on the cruise! Haha that just made me think of wall-e! I hope they have holographic ordering figured out!  So we’re gonna go have a blast and deal with the other stuff when we get back!
Read more

Tidbits from today

5/15/15 Today I asked Gratton to tell me 3 things he was thankful for. He said, "his hat, his diamond sword and his sack boy (a toy I made him)." Kahlan said I love you tonight for the first time! She kept saying, "mom" and when I said what, she'd day "I love you". She did it over and over. I love her. Kahlan and I played dolls tonight. She wanted to wrap them up and put them to bed. She had me get her pillow out of her bed, and she laid them on the pillow and tucked them in with her purple blanket. Then she would say, "go to sleep". We watched interstellar with Jonny for his last night here. Gratton Watched it with us but Jonny fell asleep haha. It was a good movie, and today was a good day. I had awful back pain today and blood in my urine again. That's actually good though, because today was the day of my ct scan. And it needs to be done while there's blood in my urine, or it's worthless. Because to confirm Dr Rahims diagn
Read more

Part 2 July 10,2022

Health update part 2 So now with the history, labs and 2 weeks of the continuous blood sugar monitor results, my specialist in Utah who is a nurse practitioner who also has her PhD in nutrition, and was a diabetes educator before opening her clinic (basically crazy credentials), she is pretty positive I've got an insulinoma.  So she and my dmba nurse case manager have been doing everything they could, speaking to each other, making tons of calls, to get me in as soon as possible with the right specialist.  Thursday morning- about the time I'm falling down the stairs, the above mentioned nurse case manager Jill, emailed me and told me that I can't go on vacation because my health problems are too dangerous to go anywhere without a pancreas workup for that insulinoma. I didn't fully read and understand the email till Friday at like 430. I tried calling the specialist recommended but they weren't open Fri.  So I emailed my nurse case manager and told her I'll rest
Read more