Mr and Mrs Awesome

I'm very annoyed today. I've been in so much kidney pain today that I've been in bed almost all day. So i get frustrated and get up and do something and then the pain comes back and i go back to bed. Just had a panic attack about being in bed too much. Took my anxiety meds though and they should soon start working. Being sick is stupid. I hate it so much.  It's frustrating because how this started- it was just pregnancy gallstones. That's it! And the Drs missed it. And so I got pancreatitis, and they missed that too. Until my sister in law Kirstie finally took me to the ER ( she forced me) and I forcibly they do labs or SOMETHING, when I could tell the ER was about to write me off again. The ER notes show that he did indeed think I was exaggerating at first.  After I insisted he do something, like at least land, the Dr noticed my stomach was jaundiced. So he did the right labs and found my pancreatitis. Good thing for the labs cause even then the radiologist said th...

I got cast to be an extra for the beginning credits of the TV show Studio C for the next 2 seasons. That's how i hurt myself. 40 people is too many on an uneven skating rink, while looking out for the camera man! I even fell the least out of everyone! I only fell once! Just happened to fall the wrong way. Caught myself with my arms behind my back. Hyperextension plus too much pressure can apparently make you sprain the ligaments holding your clavicles to your sternum. Only freaking me would do that... they can't even find a Dr in Utah who treats that injury! So hopefully 9wks of rest will do it they say, and follow up with my pcp. 9 wks of not lifting and using my arms... I'm on day 3 and already failing at that. Luckily the pain puts me back in my place and back to bed. Just shaking my head here...

The kids have a snow day today. I made cream of wheat for them. It's something I remember my Mom making me on her health kicks, that I actually didn't hate! So Kahlan and I made it, because she has to help cook everything, since she wants to be a chef. Sadly, I don't have much to teach her! Anyways, we made cream of wheat and no matter how much sugar I added, my kids do not like it! So there's one thing I don't have to make for them. I did it perfectly too, not a single bump! Gratton was very concerned about my feelings though, and pretended to like it until I left the table 😂! I went upstairs to get my creon ( pancreatic enzymes, so I can eat) and heard them talking about not liking it. When I came back and told them I heard them talking, Gratton said- sorry, I didn't mean to hurt your feelings... I explained that it is okay to like different things, and we don't all like the same things! I'm glad to have such a sensitive son, who thinks a...

Well it happened. Enough snow fell for the kids and Dads to play in! Gratton is wearing my boots, because I haven't bought him any yet for the season. Luckily his feet have grown enough that at 7 yrs old, my boots are barely big on him. The neighbors invited us to play in the snow, so they're outside building a snow man. I'll join in next time, when I have boots for me AND Gratton.

Kahlan is still too young to be in the Ballet West's Nutcracker, so I took her to go see it instead! It was our first Mommy daughter date, and we had a great time! We went to the Saturday morning show, because I knew that was the one where nobody minded kids talking and screaming at exciting parts! Glad I did, because she had lots of questions and comments. They had a few firework type special effects, and all the kids got SO excited!  I told Kahlan which parts I was in as a dancer, and it was cute how impressed she was. My favorite comment though, was when the lead Arabian ballerina started dancing, and she made a sound effect like "Ooh la la!" The actual sound effect she made was funnier, but I can't remember exactly what she said! The meaning though was clear- "she's a pretty, sexy ballerina!" Ballet West's Arabian dance actually was my favorite, out of all the other versions I have ever seen! Gratton said that when Kahlan is actually in th...

Yesterday we went to the beach, as a family. The last time we went, I stayed home to avoid getting sicker. This time I wanted to be a part of the memories, and I am glad I went. I set up my beach tent so I wouldn't be in the sun all day, but did spend some time in the water with my hubby and the kids. Today of course, I'm paying for it, but it feels worth it for the memories we made. Took some steroids, to try to stop the pancreatitis flare that's starting, and soaking in the bath for kidney pain. But we lupus warriors need to remember to live, at least once in a while. Chances are I was going to be in pain the today anyways!

I haven't done a post in eight months ago, but it is time. I haven't posted because life has been really really hard. Not that good things haven't happened as well. But every time something good happens, something with my health changes, or we have some big upheaval in our life and I use all the strength I've got to barely get through it for ONE MORE FREAKING DAY!! But I'm coping with things better, so I am going to get back to blogging. I'm too sick to work, so I have the time, if not always the energy :-) So The last post was about Gratton's first day of first day. Well when he finishes this year, he will start next year as a fourth grader! That was definitely not how I saw this year going for him academically.  The parent teacher conference with his first grade teacher in Idaho did not exactly go well. He was doing great academically and socially of course, but his teacher literally said "I just don't know what to do with Gratton." H...